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You Are Not Alone

May Mutter

The past 2.5 years I've been dealing with the aftermath of my injuries alone, with the help of loved ones. Unfortunately, as sympathetic as they could be to your pain, trying to explain what you're going through is tough beyond belief. How do you explain to someone what the 24/7 fog is? What it's like to have a headache at all times of the day, and how your fear of gaining weight is reciprocated with a migraine when you try to do as many as 5 squats in one go. They can give you a shoulder to cry on, try to uplift your spirits, and make a million suggestions they think are helpful, but you know will only end in headaches.

It is important to find someone who understands - and you can only really understand if you've been there. I have recently come across a Facebook group that is exactly that. It is about 2500 people who all have had some sort of TBI (traumatic brain injury) and are all undergoing the same symptoms. I've decided to post a few questions that have been gnawing at me - from medication advice, to fitness, to hobbies, abilities, and motivation issues.

I cannot begin to explain the flood of answers from people agreeing and providing personal experiences, nor how it made me feel. There are no words. I've started this project to raise awareness because I've felt alone, and here is this lost city, "tribe" if you will, of people who are all in the same boat. They share stories daily f what they overcome, ask questions to see if anyone can relate, and overall just send positive thoughts to each other at every minute of the day.

It's a beautiful thing to see, and I figured a thank you blog post to them is appropriate after my last one.

So, thank you.
Thank you for not being judgemental.
Thank you for letting us all rant and listening.
Thank you for your advice.
But above all, thank you for the positive thoughts and hope you've provided. Even those who've been dealing with this for over a decade - the optimism is contagious and it's a beautiful thing to see when you feel you're at a road's end.

Thank you.

6 comments

  • Well written! Our tribe is one of a kind. They are non judgemental, honest, sincere and encouraging. It is nice to know that we are not alone in this journey.

    Kelly


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